You are here: Home >Archive for March, 2006

Here we are… on another roadtrip!

This week, we are visiting the beloved DANVILLE/BLOOMSBURG neck of PA!  We are visiting Grammy & Grampa!  Novalea and Irelyn are in HEAVEN!!!  Not to mention grammy & grampa! Our drive wasn’t too bad…we left around 11 AM, trying to catch nap time with Novalea…instead…she took the time out of her “busy” schedule to market-test […]

  • Digg
  • Del.icio.us
  • StumbleUpon
  • Reddit
  • Twitter
  • RSS

What a day!

The adjustment has been HUGE! The adjustment for Devon, Irelyn and I has been easy…Novalea is a different story!  She has had SCREAMING tantrums the WHOLE drive home yesterday and today…But, by 5 PM, I think we made huge progress…Needless to say, we didn’t leave the house! Irelyn was in a GREAT mood this morning…I […]

  • Digg
  • Del.icio.us
  • StumbleUpon
  • Reddit
  • Twitter
  • RSS

Good Afternoon from Kennedy Krieger Institute!

Irelyn’s last treatment is in the final phase for this round! Dr. Shapiro has taken time out of his day today to stop in and be present during her final treatment.  He seems to be happy with everything that is going on. We were able to hang out with Clowns this morning… Irelyn just hung […]

  • Digg
  • Del.icio.us
  • StumbleUpon
  • Reddit
  • Twitter
  • RSS

Goodnight…

Here is a quick movie of Irelyn being cute after the HECTIC day! Good Night from KKI from Kennedy Krieger Institute! I can’t wait to be home for good! ~Eric

  • Digg
  • Del.icio.us
  • StumbleUpon
  • Reddit
  • Twitter
  • RSS

Another late night…

Let me tell you…what a night!  UGH! Novalea was in rare form!  A combination of things…teeth coming in, Devon and I aren’t at home, we spent the day at Kennedy Krieger, some jealousy creeping in…  It makes for a whiny, crying Novalea and a crying Irelyn…then the doctors start to look at Novalea and she […]

  • Digg
  • Del.icio.us
  • StumbleUpon
  • Reddit
  • Twitter
  • RSS

It’s 9:50PM…do you know where your family is?

Well… we are a bit scattered at the Verno’s are spanning two states…Actually…Devon is on the road heading home!  Just chatted with her. Irelyn’s first treatment went well..still no issues “popping” up. Here is what she looked like…ALL WIRED UP! I figured that I would give you some other updated pictures… Happy as a clam…No […]

  • Digg
  • Del.icio.us
  • StumbleUpon
  • Reddit
  • Twitter
  • RSS

Less than 10 minute!

The maiden voyage is ENDING! So far so good!  They worry about fever at the beginning… PASS  They worry about fever to occur at the end…almost there…and then they monitor for the first 12 hours…and then check 24 hours post… But, so far so good! Novalea visited…and had a good time!  A bit tired at […]

  • Digg
  • Del.icio.us
  • StumbleUpon
  • Reddit
  • Twitter
  • RSS

One day later…

OK… We have some updated pictures of Irelyn… they are going to start the PAM treatment shortly! We met with the PT, Heather, it was a wonderful meeting…1 hour to be exact.  She really gave us some good ideas…and some reassurance that we are doing a good job…and the fact that Irelyn had her 13th […]

  • Digg
  • Del.icio.us
  • StumbleUpon
  • Reddit
  • Twitter
  • RSS

No news…isn’t good news!

No treatment tonight…they couldn’t get the blood that they needed for some tests.  The initial infusion…they pulled several tubes of blood, but they didn’t take enough… I guess… So they are going to wait till the morning to start everything. Check back tomorrow…

  • Digg
  • Del.icio.us
  • StumbleUpon
  • Reddit
  • Twitter
  • RSS

Well…we’re here!

Thought that I would send a quick update on the trip. Here are some pics!  Things are going well so far…the staff seems wonderful. Most importantly, it seems that they all really respect Dr. Shapiro. Here is Irelyn with her BRACE on…they got all of the blood they needed, she even squirted on the nurses…HEALTHY […]

  • Digg
  • Del.icio.us
  • StumbleUpon
  • Reddit
  • Twitter
  • RSS